Lõppkasusaajate küsitlus - Eesti Tsöliaakia Selts

Sügisel 2023 viidi lõppkasusaajate seas läbi küsitlus, et saada tagasisidet seltsi senisele tegevusele ning koguti sisendit uueks 2024 – 2026 arengukavaks. Lõppkasusaajateks oli tsöliaakia kogukond (nii seltsi liikmed kui FB jälgijad) ja ETSi partnerid.

Üldistatult tõid lõppkasusaajad välja järgmised ETSi arenguvajadused:

teadlikkuse tõstmine kauplustes, koolides/lasteaedades, toitlustuskohtades, avalikus sektoris, tootjate seas ja ühiskonnas
toetuse taotlemine tsöliaakiaga inimestele
koostöö PTAga, et suurendada gluteeni- ning ristsaastumise vaba toidu valikut
lasteaedades ja koolides tsöliaakiaga lastele õige toit
toitlustuskohtade, kaubanduskettide ja haigla toitlustajate koolitamine
teadlikkuse tõstmine noorte seas
rohkem pereüritusi
info jagamine gluteenivabade toodete kohta
toitumisalased koolitused veebis
gluteenivaba toidu kaubamärgi promomine
infot mittetsöliaakia gluteenitundlikkuse kohta
igas maakonnas oma tsöliaakia eestvedaja ja kokkusaamised mõned korras aastas
juriidiline abi
kogemuslood
kuidas peale diagnoosi saamist hakkama saada (saab siduda kogemuslugudega)
rääkida tsöliaakiast pigem positiivsemas kui negatiivses võtmes.

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